Day Sixty Six and Sixty Seven

Hi Everyone


Have been having extremely good time with the sides the last couple of days and loving it, my energy is starting to come back and i finally feel like participating in life again. My taste buds are still crap, but that don't matter, the trade off for feeling OK is worth it.

Still getting Dizzy Spells and have learnt real quick, not to get up too quick and to take my time going up and down stairs in our house. The Riba Rages have also subsided and a calmness is once more with me ......

Hope everyone is keeping well and look after yourselves

John

Day Sixty Four and Sixty Five

Hi

Monday I went to my GP visit as usual and this time got some positive news, I have put on a Kilo on my weight I am now 69 Kilos, must be my clean healthy living, LOL. My blood pressure is fine and also had a talk to her about my recent Rages, I have an appointment Wednesday with Psychologist and will be discussing anger management.
My Thrush is back and forward, but mostly backed off, have had a pretty good day Monday and achieved a lot. Slept in the afternoon as I had developed a headache just after lunch.
Tuesday was also a good day in the morning, its mainly afternoons that i get headaches still, today was no exception and all i could do was take my Paracetamol and lay down. Spoke to my mates today on phone and so far i think we are all going through similar sides.
Emotions and general mood, do tend to slip if i don't watch them, I feel that I could fall into this trap very easily, trying very hard at times with this fight... Still having my Health drinks and Multi- Vitamins, some days i think these are doing me some good.....

Keep Well
John

Day Sixty Two and Sixty Three

Gidday

Well have been going through my well time the last few days and have had a reasonable time with Sides. Tomorrow is my Share Care Doctors visit again and will be getting myself checked out again, hopefully wont have lost anymore weight. Trying to eat still, but is very hit and miss, still get a metallic like taste in mouth and this sometimes i feel kills off my taste buds quite a bit, have had cravings for cheese and milkshakes lately too. I am now trying to have my energy drink each day and would like too have it twice, so will give that ago as well.

Multi Vitamins are still being taken and also my Chromium for Sugar control, Needle day tomorrow as well this will be Number 10 and that leaves only 38 to go, there moving along now and cant wait till i get to half way...

Had a great time at Nomads Chat the other night and was so good to catch up with people, everybody should at least once or twice come along and join in, Its just the place for Fun and Serious stuff alike, there is nothing like a good Laugh and a Natter to lift up your spirits. Thank you Seamo for running these Chats and its great to participate in them..

Well will report back in soon and look after yourselves
John

Day Sixty and Sixty One

Hi
I have noticed a pattern emerging with the Tx Side Effects, I would have to say for the last two weeks I have had 2 - 3 Days feeling not too bad out of the 7 days, with the others, a real mixed bag of Side effect goodies.
Its funny now, it seems that its either a famine or a feast with Sides. But I am so thankfull for my my well feeling days, this helps me cope with the really bad days, my cough is easing now and still coughing up crap, but it is on the mend.
Thankyou Everybody for your kind Support and Friendship, I think this is so important, not just for me, but everybody here at Nomads...
Pushing forward with new food ideas and slowly getting to eat something that is appealing to eat ....
Lots of Love to you All
John

Day Fifty Eight and Fifty Nine

Hi Folks

Double Post for my Diary tonight, Last few days i have felt as though the dreaded Steam Roller has come back into my Tx life again. The Last two days i have woken up aching and absolutely no energy and all i did was sleep and rest. Have started taking some more Anti-Biotic for my cough which was developing into some new form of dissolving lung disease, Just kidding, but that's how it feels at times, also having a Ventolin Puffer and is helping heaps of a night as the cold air comes in. Also been having some Extreme Milk energy drink after tea of a night which seems to help fill my empty stomach.

Food still is horrible to eat and constantly trying all sorts of foods now to see if i can at least get some nourishment.

Sorry for the downer post, but this is life in the fast lane after all and have to roll with the punches.....

Take care My Friends
John

Day Fifty Seven

Cranky One Here

Don't know whats going on with my Temper, as I previously wrote, this is an ongoing saga lately....

First off today, was my Share Care GP appointment, had the usual, blood pressure and weight taken, which has now dropped to 68kgs, I was 75 kgs when started Tx. Informed her of my nagging cough which has come back again and starting to cough up crap now with it, very sore chest at moment from too much coughing. Talked also about a Flu Injection as well, as we are going into winter here now, week eight Bloods were in and good news is my Iron Levels are now at a near normal level, Yea some good news, but Platelets are low and weight is down and she asked me not to do any heavy stuff what so ever, also i think my ALTs and ASTs have gone up, but they seem to fluctuate all the time with me anyway.
From there to the next town to a Dietitian and have a chat about what i can do to help with my weight loss and appetite in regard to a proper Diet, came home with and Extreme Milk Supplement and some literature on eating healthy and strategies..
I did get extremely angry and almost to the point of violence at the Hospital, outside of course, when i was leaving, never mind, i am seeing Psychologist next week about this. Had my 9th Injection today and five or six hours later was desperately looking for my cave, to have a siesta and some peace and quiet to chill.....
John

Day Fifty Six

Hello

I think the good run of health lately may be running out, tonight i had trouble eating and very tired and aching, cant expect the good times to last forever eh, so i just rested and reflected back on how wonderfull the last three days have been. Lots of thought's go through your mind when your well, shouldnt question them i suppose, but you tend to think that maybe the Tx might not be working and then the sides come back with a vengeance and you relax again.

How bizarre, I feel at ease more when i am not well, dont know how that works.....
Going to my Share Care Gp tomorrow for checkup and weekly report in and after that, off to next town for an appointment with a Dietician, to see about my weight and eating problems.
9th Injection tomorrow and only 38 to go, woo hoo ............

Take Care all
John

Day Fifty Five

Howdy All

Another good day today, but did run out of energy later in the day and almost had another Riba Rage, but stopped it before i went into full on rat bag status. Had a sleep this afternoon and replenished the batteries abit.

When i woke up I had a headache and took some Paracetamol, taste buds are going troppo again, as tonight's tea was one of my favourites was eagerly waiting for it to be ready, but when i started to eat it, the same thing as the other night, tasted horrible..

Will be glad when this part passes and hopefully it wont be like this for the full term of Tx, crazy how things like this raise there ugly head, just when you thought you have seen all it can throw at you, it comes up with another little gem to cheese you off.

Here i was thinking that the sides were leveling out, HA, silly boy, but you know, bring it on I say and lets make this a battle and a half.......

Be Good
John

Day Fifty Four

Hi Yah

Well i don't know what is going on and i am definitely not knocking it, but i have had another great day again and I hope this is a sign of things to come, and my concentration is getting a lot better.
Still getting some head spins if I get up too quick after bending down, but learning to handle that better now also. Went out to friends place tonight, which felt a little strange, but all went well. Do have to socialise a lot more, else I can feel myself turning into a hermit, i must confess also i had a treat tonight, probably shouldn't have, but I love Home Made Lemon Merang Pie,

Oh wasn't it nice, sometimes i think we need treats to make up for all the things we put up with on Tx.

Fingers crossed tomorrow will be great as well, still taking all my Sups and i think they are helping nicely........
John

Day Fifty Three

Hey Everyone


Today was a fantastic day, just about Zero Sides, Felt so different and i was not going to waste this by staying in my cave sleeping. Got lots of things done and exercised as i was going, have to keep an eye on muscle wastage as well as my decreasing weight, I suppose it must have been a lucky dip today and I won a bonus day..

One strange thing was that this was the first time in 3 to 4 weeks that I haven't slept through the day, can this be my leveling out point, I don't know, but would be Nice.....


Well lets hope tomorrow will bring me another day like today. I am still having intermittent problems with my taste in regard to food, some how, its looks great, smells terrific, but it tastes like pulped wood...

Be Kind to each other
John

Day Fifty Two

Hello There, Me again

Hope you are all keeping well, I went to my Psychologist appointment today to start another 8 fortnightly sessions with her, I enjoy chatting with her and today we focused on my temper which lately has got right out of hand. I don't mean to be so snappy, it just comes over me and I explode like a raging bull, only to feel so bad after it, to the loved ones i seem to take it out on.
Anyway next visit will be working on some anger management techniques and strategies. After we came home, had some lunch and more pills, Multivitamins, Pro-Biotics and other things I went and laid down and slept again for 4 hours, woke up feeling much better, also last night had Night Sweats again, haven't had them for a while, ah well, must have been due i suppose.....

Overall today was manageable and wasn't to bad as Sides go.....................

See you Soon
John

Day Fifty One

Hi Everyone
Had a flat start to the day today and thought I just cant be bothered getting out of bed, took my morning Ribas and my Toast and Peanut Butter, finished brekkie and laid back down.. Snoozed for a while longer and awoke and thought to myself, get your arse out of this bed NOW...
Got up, showered and dressed and went into town and had my week eight Bloods done, the lady had some trouble getting a good vein, as most of mine still have severe scarring from IVD days years on. Ended up with a bruise and some soreness.
Came back home and did some very light work on house and by 1-30 PM was back in my Cave and in bed till 5-30 Pm, Just had no energy and felt like the trucks had driven over me again. Had my Health Drink, Sustogen to try combat my weight loss, also Multi-Vitamins as well. trying everything i can to put some goodness back into my body and increase my strength..

Keep Well

John

Day Fifty

Today had my 8th Injection at 11.00Am and for some reason it stung like anything, don't know whether I did it at the wrong angle or whether the Needle tip was a bit dodgy, have been wondering about faulty pens and stuff after reading threads here and there on the subject of malfunctioning Pens.
I think the tip may have had a barb on it, next one i will check more closely, apart from that the rest of the day went well and this week, I got a boost of energy, I was expecting that last week too, but it fizzled out..
Had plenty of visitors come today, but sometimes i don't feel in the mood for them, Its not there fault, its just the Meds playing with my head sometimes. Had all of my extra Pills tonight, I think... Maybe I will have to buy another weekly Pill container to put my Extra Medication in, as i am having difficulty remembering whether I have taken them or not, or if I have doubled up..
Anyway see what tomorrow brings, Keep well All
John

Day Fourty Eight and Fourty Nine

Hello There

Has been a great weekend so far and the Sides have given me some time off for good behaviour thank goodness, i am not complaining, its very welcome and just in time for our visitors. Its great to share time with Dear Friends that one has made on my Life Journey.

Still have been sleeping a terrible lot, but i just go with it and when I awake, feel a bit more refreshed.
8Th Injection on Monday and another box down, only have 40 Needles to go, that's gotta be good

Keep well my Friends and be kind to each other.....

John

Day Fourty Seven

Hi
Low energy day today, woke up a bit exhausted after a restless night and vivid dreams had two sleeps today and probably could have gone a third. My thrush in my mouth has improved very much and i reckon by the time i finish the course it will be hopefully gone, eating now much more easier and that blistery type feeling on my tongue has gone. Have been taking my Pro-Biotic , Chromium, Lexepro ( ADs ), Thrush lozenges, Ribas,Paracetamol , and Multi Vitamins, with all this I should be like Superman, ( After Kryptonite Exposure )

Overall not too bad a Day

John

Day Fourty Six

Hi Me Again

Finally, my mouth and gums are starting to settle down, its really nice to be able to eat with the discomfort of this Thrush i have in my mouth. Had a nice sleep this afternoon and woke up with a huge headache, which settled down within an hour.

Some Dear Friends have come for a visit while they are travelling around Queensland and we haven't seen them for 3 years, so is great to catch up with them again, Have explained to them about my Tx and told them if I disappear into my cave for a sleep, that i am not being rude but I must rest or sleep when it comes over me.

Most people have been very good in understanding how this Tx effects me, some I think, may have found out about my HCV status and have gone really weird towards me, doesn't bother me that much, but I cant expect everyone to understand....

Funny how a lot of things go through your mind on Tx, and the sorts of things you think about

Keep Well

John

Day Fourty Five

Hi Everyone
just an update on my GP visit today
Have lost -5 of a kilo, Blood Pressure normal, took in my Side Effects paper work...
Told her of my very tender gums and tongue and that it felt like blisters, after examining me, told me it was thrush and it was expected with the Tx, so she prescribed some Lozenges to take 3 times a day and after main meal.
Also told her of a rash down below that has also surfaced, not a pretty topic i know but these things have to be addressed and also have some cream for this also..
Went to Chemist and purchased some Blackmores Multi Vitamins, with no Iron, very hard to get Multi Vitamins without some sort of Iron. So bought a bottle of 100 for $48.90 which i thought wasn't too bad..
So hopefully all this will help alleviate some unpleasantness and a good List of helping Meds is building...
Take care All
John

Day Fourty Three & Fourty Four

Hi Everybody
Double entry tonight as Yesterday was a total wipeout and I just ached and slept most of the time.
Today felt a little better and back to my Normal dose of Ribas, the morning was much of a muchness with sides, Have been checking my Blood sugar first thing when i wake now before eating and they are sitting around the 5.5 constant, which i am very happy about.
I am trying to keep my mind occupied more now also, as i find it very easy to dwell on how bad things can be and i dont like doing that, it leads nowhere...Tomorrow go to my Gp for weekly checkup and a chat, i have some questions which i better write down cause if i dont i wont remember......
Sides are still with me, but am keeping as positive as i can about them and going with the flow...
Take Care All
John

Day Fourty One and Fourty Two

Hey
What a weekend, first off on Saturday Night whilst in Chat, we had a bad storm here and Lightning struck nearby and Blacked Out the whole town for 3 hours, didnt even have enough time to shut down and then absolute darkness. Fumbling around in the pitch black, I managed to find a torch and make my way through the house, marvelous how much we depend on electricity is'nt it.

Have now caught up on 2 of my 3 missed Ribas and on monday the last extra will be finished, dont know if the Ribas does it to me or not, but the last 2 days I have been extremeley out of breathe and it hurts to breathe sometimes after any sortof exertion.

Its as if the extra 200mg a day is too strong for me or something, glad when i go back to normal 5 a day again instead of 6 and it totally made the weekend a washout for me, nausia too and unwell feeling over all. Well after all, was Dumbarse John's fault for forgetting to take them so i will cop the punishment....

See you Monday and have a good Week
John

Day Fourty

Hi Everyone

Just a short entry in here today, all is well, except i discovered that i forgot to take last nights Ribas, oh Boy, nevermind will add one extra to my morning dose till i catch back up. Dam, was going well with taking them, ah well, nevermind, can be fixed...Feeling very motivated today and only a short sleep, as i said in earlier post, i think mybody is going through a change for the good..

Keep Well my Friends
John

Day Thirty Nine

Well the last few days have certainly been different for me I think my body is changing, I have had lots of energy and my will to do things has come back.

I dont know if its the Tx winning over the Dragon or is the Tx being kind to me.
These feelings of well being are so welcome, I just had to tell you all.
Hopefully they wil stick around, its not that the sides have stopped, I WISH
but they have definately evened out some what.

I just thought I would share this as a positive piece of News for a change..
There is hope out there still and my favourite saying " Never Give an Inch " in this case
has paid off....

Take Care my Friends
John

Day Thirty Eight

Good Evening

Went to Gp today and talked to her about IR and had some good discussions from both sides on this matter, also received a prescription for Metformin and a Referral to a Dietitian to sought out my eating habits and food type intake.
Had my weight taken, it is down another Kilo and now weigh 70 Kgs, so will have to nip this in the Budd, my Blood Pressure was up too and she said maybe from Stress lately which is understandable after the last few days.
Also booked in with my Psychologist for my upcoming appointments and looking forward to that, i think I could do with that lately also.......
Had a short sleep today and over all had a good day and feeling like i want to do things again outside, which is a feeling i haven't had for a long time..

Keep Well All
John