Tuesday, March 31, 2009

Day Thirty Seven


Hi
Well what was i gloating about no Sides for a while and wondering whether Tx was still working ?I can assure you today it let me know in a big way that it is, Woke up feeling like i was a rag doll and had just about zilch energy, forced myself to get out of bed and get motivated.
First part of the day i was experiencing dizzy spells and light headed and the second part of the day I was completely washed out as far as energy goes. Slept twice in the day, had too, I was just that warn out.
Guess i should have kept my mouth shut about sides eh, because they have certainly not abandoned me that for sure, next time i go on about no sides, somebody slap me please. Off to Gp tomorrow and much calmer now, I must apologise to everyone for being such a ratbag lately over these meds from Gp.......

Take Care

The Dreamer

Monday, March 30, 2009

Day Thirty Six


Me Again
Well today i changed my Injection time from 11.00 PM to 11.00 AM, the reason I have done this is that after the last 2 Injections, I have felt terrific for hours afterwards, but it was late night and i had nothing or no one to talk to. So at least in the day I can get the most out of the good feelings instead of wasting it.
Talked to Clinic Nurse about getting some Metformin and discussed it with her, She said that it was Ok and that it did not interact with the Interferron, so contact my Gp for a script.....Anyway i wont go into that right now as i have finally calmed down, well nearly Human again anyway this

Anyway onward and upward from here

Raging John

Day Thirty Five


Hello
Had a good day today, except for a couple of head spins from bending down and getting up also had 2 sleeps today, these sneak up on you from time to time, but i dont fight it. My Blood Sugar Levels have gone haywire again, dont know why, i am not doing anything wrong as i know, well will contact Typo and talk about it.
Bye for now

Sunday, March 29, 2009

Day Thirty Four


Hi
Well what a strange day, i actually had energy most of the whole day, is this normal on TX ?? it some how seems not right and as i said in my last entry, I hope the meds are still working I also worry that my BS levels are not hampering my meds from working properly.
Dont get me wrong I love feeling like this after the weeks of ill feeling, so tomorrow i will put my new found energies to work and just try and do some catch up on the yard duties.
Very different feeling I can tell you, what next does these drugs have up their sleeve for me.....still drinking lots of water and having small snacks through out the day, no headaches either
Take it easy
John

Day Thirty Three


Hey Everybody
Had a really great day today, No Sides and actually had some energy to do things, at one point i even thought that the Tx had stopped working therefor no Side Effects, The mind conjures up some weird and wonderful things at times, hopefully these good times in Tx will flow on into tomorrow.
Take care All

Day Thirty Two


Hi

Busy day today, my Son and Daughter and Grandson came up for a visit, to check on me what a great surprise and felt very proud as it is a long car journey for them all. Today went to my GP and had the usual checkup, haven't lost anymore weight which is really good and also got the results of my Chest Xray, which was all clear. Mentioned to her that i would like to go back for some more visits to psychologist and also discussed some health drinks.
I asked her if my PCR results were back and she told me, that i am still Detectable and there was no figures of Viril Load, which i thought was strange as i have seen others on here with 4 week Pcr VL figures, well never mind i get the idea anyway, at least i know something which puts my mind at ease now.
Sugars have been good 6.3 today and holding so far, hopefully i may have this back undercontrol. Still getting aches and pains, but starting to become more managable now.
All i have to do now is get my sleeping of a night sorted, but one thing at a time......
Take Care
John

Day Thirty One


Hello There

Another day in paradise, well i wouldn't go that far really, had some high Sugar Readings againt his morning 9.3 ouch, felt very dissapointed after yesterdays figures of 4.4, dont know what is going on, so tested in afternoon and it was 6.6. Was a bit better, but not as good as 4.4, well just have to take twice a day to see if a pattern is emerging out of all this.

Still very dry in the mouth and my tongue feels like it has blisters on it, maybe from Anti-Biotics anyway last one tomorrow and there finished, so will see if those issues get resolved. Another thing today was Mini Rages, every family member seemed to cop it from me today, dont mean to be like that to them, it just comes over you and after, i feel like a big heal for blasting them.


Will talk to Gp tomorrow about this as well, while i still have a family around me......
Till we meet again
John

Day Thirty



Have some great news to tell you all, my Sugar Level tonight was 4.4 and i am so happy about that, also my Antibiotics seem to be kicking in and finally getting rid of the hot feelings i have been experiencing lately. Had Chest Xray done today and will find out results on Thursday and hopefuly the PCR test results as well, also had my afternoon siesta after walking around town today for 30 mins, so got some exercise in today. The Chromium i am taking for my Sugar reduction is working a treat and has also done for me as well before, should have remembered about it, but you know how it is with concentration on Tx .......
All in all i have had an exceptional day and hope everyone is keeping good as well........
See you soon
John

Day Twenty Nine

Hi
A very good day today and what a difference, maybe things are settling down, I hope so anyway Going to get Xray Tuesday, all booked in for that, cant get in to Doctors till Thursday, so will have to wait till then to discuss some issues. Tested my sugar today and it was 6.5 which i was very happy about and of course tonight I had my 5th Injection, has been a bit of a big day and did have a nice sleep this afternoon. Spoke to my Tx buddies and overall I think things maybe getting back on track.
So I will update more tomorrow
Goodnight all
John

Day Twenty Eight

Me Again
Not much happening today, made some decisions on my direction today and will apply those things from now on. Off to Gp's tomorrow and Xray and Chemist and anywhere else i need to go, to get myself back on track, been much better in stomach now, with Pro-Biotics and drinking more water now as well, no wonder i am running to Loo so much, feel water logged LOL
See yah all soon
John

Day Twenty Seven

Hi All
Well Saturday here again and had a good sleep after my day trip to clinic had some conversations and Pms with Typo and Cs, about Sugar levels and what to do in regards to solving this issue. Health has been not to bad, still sleeping alot, but not fighting that as much as I was doing and is working out better. Been taking my Pro-Biotics and stomach is feeling much better.
john

Day Twenty Six

Hi

Today we went off to the Liver Clinic in Brisbane, a 3 hr Coach trip, got down there by 11.00 am and dropped off my cooler at clinic whilst we killed some time before appointment. When we saw the Nurse she had asked how things were going and i informed her of Sides that i was experiencing, she took my blood pressure, weight and temperature which was 38.6 degrees, which she said was running abit high, Then Heptologist came in and checked my heart and lungs for any untoward sounds and told me he thought i may have a bacterial infection in my lungs and gave me a prescription for some heavy duty Antibiotics and a request for a chest xray. Talked to Nurse about my taking a Pro-Biotic daily and asked her about which Multi Vitamin i could take and also about some Health drinks to boulster my weight back up too. Was told to that my Sugar reading had gone to 13 so have to watch that very closely, or will become Diabetic. Also received 3 more pre written Blood Request forms for future tests, was a good day till we went to pick up the Peg-Intron Pens, because we live so far away from Hospital, they give me 2 months supply to save travelling. When we get to Pharmacy, they inform us they have none, GRRRRRRRR, oh well, they will courier them out to us at no charge, so that was good, some other weird stuff happened, but i wont go into that right now....Then back onto the Coach for return trip which took 4 hrs due to traffic and a road accident on main highway finally got home 9-15 pm.
There's No Place Like Home
John

Thursday, March 19, 2009

Day Twenty Five

Hi There
Well a short entry tonight, today was, i suppose a very good day considering, woke up feeling good and basically continued through out the day, had my afternoon siesta and also took a Pro-Biotic capsule with lunch, decided to give them a try out, Cs had told me about them before, but i forgot, and seen it again somewhere and thought about them and remembered him advising me, well i have them now and will be taking them daily.
Off to the big city lights tomorrow for Clinic appointment and to get some more Ammunition for the battle against this hideous virus......
I would also like to thank all my Friends at AHCS Forums for all the Support, it has been
Wonderful......

So will post how things went Tomorrow Night.

Until then
John

Day Twenty Four


Hi Everyone
Heck i had a bad night last night, i felt if though i had things crawling on me, got Cheryl to check numerous times, but nothing there, ended up stripping bed and changing everything, and still it came back, think i got a case of the Hebe geebies or something. Also itching everywhere , especially scalp and face, tossed and turned and was awake at 4-00 am and went outside and just stared at the stars for ages could not settle and don't feel like eating anymore, but i will force it down...
Done some work on house early in the day and then ran out of steam and slept most of the day, starting to feel like Rumple Stilts kin LOL

Sorry for the big Rant
Lots of Love to all
John

Day Twenty Three

Hi There
Well went to Gp Share Care Doctor today for my weekly meeting and had my blood pressure and weight taken as well as handing in this weeks Side Effects Questionnaire, discussed how i was feeling overall and told her about different feelings i have been experiencing lately. I have lost another Kilo in weight, down to 71 kgs now and will talk to Liver Clinic Nurse about some health drinks and Vitamins whilst at Hospital visit, also got a copy of last Mondays bloods results and had a good yak to her. Next up will be Thursday to get Bloods and PCR bloods taken, probably will take a week i suppose for them to come back. Have been fairly good today except for tonight, had a Mother of a Headache, which will not go away hopefully going to bed soon will cure that.
I will Post Blood Results for those Interested......
Take care
John

Day Twenty Two

Hello
Fourth Injection taken tonight and only 44 to go woohoo, i must admit that time is moving along all right, today was a bit of a wash out, did manage to do some little things, but nothing major. Had lots of joint pains today, especially in shoulders, also noticed that going out in the sun without my shirt on isn't a good idea either, but then remembered that i have read and was told about that, der, dumb Spackros, forgot all about it, well wont forget again, cause it stung the crap out of my skin for sometime after. I would also like to say that is great having my Tx buddies ring me up, Linda and Robert who constantly give me support and friendship which helps no end, to discuss Tx events, whether high or low, it is very comforting.....as well as all the support from my fellow Heppers, Thank you to you all..
See you Soon
John

Day Twenty One

Hi
Hmmm, another week now finished and Injection night coming up tomorrow night, first empty box coming up. Was a bit achy and very low on energy today, had 2 sleeps and found it very hard to focus tried to do some painting, did a small bit and then started getting very frustrated with it and thought, stuff it, i really cant get into this today. Had some more itching today and hot flushes constantly, haven't had these for a little while, feels as though i am hot on the inside as i have mentioned before and when this happens i seem to get very short tempered. I have had my Ribas and now the buzzing starts again and sometimes get a taste and very dry throat with it. Still drinking water and cant seem to quench my thirst at all.....
Good Night All
John

Tuesday, March 17, 2009

Day 23

this is a test


Saturday, March 14, 2009

Day Twenty

Hi Everyone
Well it's great to hear that Ralf and Spice have finished up there Tx and both are on there way to a new and improved life now, with the death of there Dragons behind them, its gives us people still on Tx inspiration to keep going forward. Today was another good day, did have a sleep this afternoon, always seems the same time, which is about 3 - 3-30 pm and i am looking towards going into my cave and hibernating for a few hours, still getting the buzzing after night time Ribas and sometimes like a reflux feeling or burning, still taking them with peanut butter as recommended, don't get it with the morning ones, only night time dose. Sunday coming up and think I will have a rest day, need to I think, trouble with feeling better is that i tend to go at things a bit harder, then pay for that the next day. Memo to self, must pace myself....
See you Soon
John

Friday, March 13, 2009

Day Nineteen

Hey
Friday again already, boy the weeks are going fast and the weekend is near, today i have had one of the best days on Tx so far, woke up this morning feeling great, had to check if i was dreaming LOL. But I wasn't and its a good feeling after the last weeks, I can tell you, so not to waste this day, I got out and did some mowing on the ride on and have started to reclaim lawns back from jungle. Couldn't believe it, finally no gloom and doom to report, much better don't want people to think all i do is whinge, i am not like that, merely telling my story as it island pulling no punches in doing so, as to give would be Tx people an insight to some or all of the Sides one may or may not experience...
So on that that note, i will leave you all now and keep well....
John

Thursday, March 12, 2009

Day Eighteen

Hi
Well good news to report today, had a very good day indeed, one of the best so far since starting Tx. I took things easy still, as I wanted to get as much of this for as long as i could during the day. Had a restless night last night and didn't end up getting to bed till 5-30 am and then back up at 8-00am for morning Ribas, considering the lack of sleep i had, I felt very good and had a great day overall. Will be off to Chemist later to look at some Pro-Biotic capsules to help with toilet and tummy issues....
Till next time
John

Wednesday, March 11, 2009

Day Seventeen

Back Again
Hi all, well today started off crappy, but i gave myself a bit of a kick up the rear end and got on with things, as the day went on in the usual hit and miss type feelings, as well as a bit of temper thing happening with my wife Skinny. Dont know why exactly, i started to get short with her but I did and totaly felt like a heel afterwards, John what is happening to you ?, i am usually very even tempered and hard now a days to fire up, before Tx, due to my Happy Pills i have been on for some years. But today they didnt seem to help and i opologised over and over, to my carer who doesnt deserve or need crap from me. Bit of a sleep late in the afternoon and back up again feeling a lot better tonight. have noticed my 3 rd needle site starting to sting now, funny how it takes a few days to react...
Well off to bed now and hopefully a dry Bed tonight and a break from night sweats......
Take care all
John

Tuesday, March 10, 2009

Day Sixteen

Hi
Was another wash out day today after 3rd Injection last night, felt OK when i first got up and had my morning Ribas and started to do some light work on house, but by 11am the dreaded aches and pains where coming back and i felt very hot, like a bit of a temperature thing happening. So i took some panadol and laid down and slept on and off till 8.00 pm. At one stage got up to go and do something and had a bit of a dizzy spell and had to get my wife to help me back to bed, I was hoping that today i might have had a bit more energy after Injection, as I have read other post's where people have good a good day after there Injection, but it wasn't to be today, maybe after next weeks one hopefully. Most of the day was a real wipe out as far as achieving anything, but what can you do, maybe i am fighting things too much and should just roll with it abit more.......
See you Soon
John

Day Fifteen

Hi Everyone
Another year older today, i am now definately feeling my age LOL , Health wise today was fairly good, the weather here has been nice and cool, due to a Cyclone up north from us has formed and brought strong winds and rain. Well this morning, went and had Bloods taken again and also went to my Gp shared care visit, have lost another Kilo and blood pressure and stuff ok. Did manage to get Last weeks blood results, which i will post at end of this entry. Also had my 3 rd Injection tonight, havent got much of a stomach area, so will have to plan next week, where to have next injection site, without overlapping to much. Its been about an hour and a half since had it, and seem to be feeling quite well. Maybe things are settling, would be good, well soon know when i get up tomorrow and see how i am feeling, but will face that then.
Blood tests Results for last Monday too follow after i scan them

Take Care

Day Fourteen


Howdy

This morning i woke up feeling well, shock , horror and surprise, other then the usual Sides of bone aches Decided to go upstairs and do some work on house, thats what i thought, but got side tracked looking out window oh boy, might need to have a keeper soon, just to make sure i dont go off with the fairies and not achieve anything anyway i managed to make up a fly screen for the last window and finished it off, what a chore, before would have been much easier to do before Tx.
After that i laid down for a nap and slept for 3 -4 hours and woke with some more energy, Robert rang up to see how i was going and we had a good chat to each other, great to have the support i am getting from all of my fellow Nomads, it really helps.
Later on went out and got on my ride on lawn mower and spent a hour doing some grass cutting, which was good, gets me away and out of my Cave that I always seem to be in lately. Still buzzing of a night after Ribas and starting to become a night owl, good thing we have our forums...
See you Soon
John

Day Thirteen


Hey There


Had a rest day today, slept most of the day, still recovering from the previous day, aching as usual is still here and now my concentration is drifting abit, all part and parcel and well worth the effort of this battle.
Been having vivid dreams as well and woke up yelling at someone, daughter came in and asked if i was all right and told me I had been yelling out in my sleep, great, hope i am not swearing or cursing real bad Lol
Have gone off eating a bit too, feeling hungry, but cant seem to work out what i would like to eat,


oh well keep Plodding along and on to the next day.

Take it easy......

Day Twelve


Gidday


Another new day today and another new Side, yes folks the dreaded diarrhoea, sorry to mention this but i am afraid it is part and parcel of it all, i have felt this uneasiness and was wondering when this would come about..
I have had bad aches in joints again today and no energy at all, but put that down to the toilet issues, which i thought may have been the culprit, usual night time feeling again, unsettled and buzzing still, but that's all good.
Sorry this will be short tonight, as i am not feeling very good, maybe tomorrows episode will be brighter.....


Good Night all
John

Thursday, March 5, 2009

Day Eleven of Week 2 - of 48Wks




Hello
Today has been a good day, today, weather was much cooler then yesterday, which made me feel a lot more comfortable with the hot flushes i sometimes get. Still having trouble with night times, in regards the Ribas, but i am starting to accept this now as i think this will become the norm. Did get a bit flustered tonight with Kids, they were only having some fun, but i was getting irritated by it, don't know whether that's from Tx or just me getting old and crotchety lol.

Had my afternoon sleep, this is becoming very ritualistic as well, nearly always about 2 -3pm i am looking for my nice comfy bed in my Cave, where i can escape to. Still buzzy of a night, have found that talking to my dearest friend of a night, has kept me sane and happy with much laughter also, definitely the best medicine for everything.

My friend Robert goes for his 3rd injection tomorrow and i wished him all the best tonight, its good talking with him also and can discuss Sx together and help each other. I am worried about week 3 coming up, because i have seen a few posts lately which discuss heavy going for some people and i wonder if this is par for the course. I feel very much for those people and hope that i will be as strong as those that have gone before me.

All the Best
John

Wednesday, March 4, 2009

Day Ten of Week 2 - of 48 Weeks


Me Again
Hi everyone, the journey moves forward into new territory once again, this morning i woke with a distinctive Haze going on in my head, not sure whether i was just over tired or some new Sx starting in this chain of Tx events. Had a delivery here today and had to concentrate really hard as to the delivery people asking me lots of questions... AHHH dont ask me too many, not at the moment i thought lol but managed to get passed that, have noticed i feel a general feeling of my body being taken over by Tx now and almost as if my system is getting loaded up, for battle i would imagine and hope.
Clinic Nurse rang me today to see how i was getting along so far and to let me know that my first blood tests were all good and there has been no big hit to anything, which she said was great at this point, when i go to Gp next week i will get a print out and let you all know the Numbers and info. I am starting do dislike night time now also, i seem to feel different at nights than days, sometimes i can't wait till daylight, dont know why, just the way it is at the moment... Feel so alone at night, not sooking, just stating an emotional fact........
take care all and keep well
John

Day Nine of Week 2 - of 48 Weeks


Hey Everyone

Well woke up this morning totaly different today then this time last week, did not have the run over by a mack truck feeling on my body. Had a few ups and downs, mainly headaches again and i am drinking a lot of water, also the first night i have experienced a reflux type sensation and a bit of nausia. Later in the night i felt very tired and had to crash out for a while and now just typing this up, before i hit the sack.
Went to Gp today, blood results not back yet and i filled in the side effects questionair and blood pressure taken and also weighed and have lost 1 klg, which i dont need to do as i am not exactly built like superman here. Hopefully will get blood results soon and let you know how they went.
In regards to meals, I am having lots of vegies, chicken and some red meat, and snacking through the day as well, toast and peanut butter for breccy and more peanut butter at night time Riba time, behaved my self at Gps and did not put down that i had thrown any remote controls or microwaveovens for that matter either LOL
Take care and see you tomorrow
John

Day Eight of Week 2 - of 48 Weeks


Hello Everyone
Day 8 already, doesnt time fly when your having fun, Hmmm, well something like that anyway lol went out again today to the next town and this time i got Skinny to drive after my last venture of nearly going bush, much better idea. Went and had my blood test's done and also dropped into Gps to check out my last needle site irritation thing, which was starting to sting and a burning feeling also, As others have suggested putting some soothing cream on the area has helped, thanxs all for that.Came back home after the running around and it was extremely hot here today, so stayed indoors and watched some Tv and also slept again, a lot of sleeping lately, but i suppose thats a good thing.
Tomorrow go back to Gp, to be weighed and return some side effect questionaires and generally discuss how things are progressing........
Rest Easy my Friends
John

Day Seven Week 1 - of 48 Weeks


Hi
One week down and 47 to go, today was a real wipeout, in the morning i felt not too bad, so decided to do some light work on the house, felt ok till about lunch time, then this washed out feeling came over me to the the point where I just had to lie down. I went to my trusty cave (Bedroom) and laid on the bed and slept for about 3 - 4 hours and when i awoke felt much better. Have noticed a little uneasyness in my stomach again tonight, just a few hours after my Riba's, might have to have something a little different to take them with and experiment. Still feel some buzzing of a night from them, but dont have trouble sleeping, that part still functioning ok.
Also noticed some irritation around my last injection site, wasnt there earlier in week and is now very prominent and itchy and red, will show Gp on tuesday when i go. Have to get bloods taken tomorrow and also 2nd Injection tomorrow night.
Take care
John

Day Six of Week 1 - of 48 Weeks


Hi All
Well today was one of the best days i have had, nearly no sides today, until tonight i started getting itchy feeling again, nothing real bad, just abit niggly. My water intake is good now and appetite is picking up as well, still get some stomach uneasyness very late in the night, but hopefully that will dissapear as i get further a long Tx.
Went into Chat tonight and had a great time as usual and caught up with a lot of fellow Nomads, great night, to finish off a near normal day........
talk again tomorrow
John