Day 184

Hi

Well a bit bruised and battered after my fall last night, but not to worse for wear. Was 35* Celsius here today and at 9.00 pm tonight it was still 24* cels. Looks like Spring has sprung straight into summer. Put my moisturiser and Steroidal creme on after my shower this morning and again tonight, think I might be making some headway, with this leper style rash. Itching is still there, but not nearly as bad, touch wood, now that I have said, I probably turn into one huge sore all over me... LOL

Appetite is a bit down at the moment and starting to screw my nose up at certain foods again, couldn't sleep last night much and at one point at 2.45 Am I made up this big plate of mixed salad and cheeses and lots of Italian Dressing, just had to eat some salad, why then of all times, but it was Delicious and finished it off with two oranges and a Mandarin. Have noticed that the cravings I have had for totally different tastes maybe similar to Pregnant woman's cravings in where as the body needs to have certain foods or minerals, don't know, Bit its food for thought ( no Pun Intended )

Be Safe and Be Well

John

Day 183

Hello again

Well went to GP today and had my usual ob's done again and spoke to her about my Rash again and she thinks that it is eczema and that all I can do is keep up the moisturiser and Steroidal creme at least 2 - 3 times a day. Also mentioned that my urine was darkening abit lately and some what pungent smelling, so I have request to have a sample tested. Lost a Kilo again, now 65, just cant seem to get past 66 kg and then back down to 65 kg. It seems to be hovering around the same markers each week.

She also stated that my Ferritin levels are increasing again and that they will be keeping an eye on those, due to the Heamochromotosis that I have. Apart from that shes fairly happy with my progress.I had a bad fall tonight about 40 Min's ago, while going to shut the dogs up from barking and I tripped over my slippers and went down full weight on my knee's and sort of bashed and burnt them while hitting my jaw and face on the sideboard, scared the living crap out of me and I am going to be sore and sorry tomorrow, well that will teach me for going off at the dogs for no real reason and the fall brought me back to earth real quick.

Have a good Week

John

Day 182

Hi All

Well gave myself a kick up the backside today and woke up to myself and got on with things, don't know where the downer thing came from, sort of right out of nowhere, anyway back on track and enjoyed my day.Have now applied moisturiser twice today all over and added Celestone Creme with .2% Steroid, had helped some but not much.

This I would class as the most irritating rash I have ever had and its not easily soothed. Will be going to Gp tomorrow for my weekly appointment and once again see what can be done and talk about possible referral to a Dermatologist. Many of the Tx sides I have battled through, but this is nasty, well they reckon we pay for our sins.........


Have a good week
John

Day 181

Hi

Tonight was my 27th Injection and truthfully speaking I didn't want to have it, why, because I think I am just plain worn out at times and with all the different mix of Sx, but I thought I have come too far to chuck it in now, but I was questioning it seriously. It all went well and I did eventually have it, so I guess it's on with the show and see what this one has in store for me what ever it is just stack it with the rest of the pile.

Slept most of the day and I think this was from the effects of the phenergan ant-histamine tablets from the night before, don't really like this feeling as it seemed to waste a good day away from the nasty sides.Hopefully be in a better frame of mind tomorrow and back to mainstream fighting off the remaining virus and a bit more relaxed as well.

Keep Well
John

Day 180

Hello again everyone

Another good day today, feels so good to have had some in a row for a while, didn't do much today was basically a chill out day and reflection time I suppose. Beautiful spring weather approaching and I seem to be daydreaming alot lately, which is a good thing as it settles my temper very well and don't feel the rages as much now either. The family is happy about this and the evil grumpy old man is slowly disappearing, thank goodness.

Needle night again tomorrow night and lets hope the good times stay after it, never know the gods maybe smiling on me this week. My cough is starting again and back to the puffers, which help that abit, funny really I have noticed that people on Tx soon build up a huge store of helper items along the way, which become very valuable to us all in times of need.

Maybe one day the drug companies may put out a list of helpful meds to go along with the Tx regimen..

Be Kind to each other

John

Day 179

Hi Everybody

Another fair sort of day today, not as good as yesterday, but still light on the Sx part of Tx the rash is really taking hold now and feel like I want to jump in a pool of moisturiser to try and calm the itching down. Apart from this, feeling not too bad in contrast to the last few weeks.

Not sure but I think the thrush in my mouth is coming back again, I hope not, spoils all my food tastes and I definitely cant afford not to be able to eat, so back to the lozenges .........

John

Day 178

Hello

Well another nice day again today, woke up during the night with night sweats and changed 3 times, but were not as bad as I have been having, so looks like they maybe subsiding. Went to my psychologist appointment today and had some good talking with him and he also mentioned trying some Paw Paw creme on my rashes, which I will get and try and see how that goes. The rash is becoming terrible, mainly the incredible itching that just doesn't stop at times.

Got some bloods back to day and as follows
07/08/09 17/08/09

Hb 109 Hb 106
Wcc 1.1 Wcc 1.3

Neuts 0.50 Neuts 0.54

Plateletes 63 Platelets 62

Ast 50 Ast 55

Alt 77 Alt 88

GGT 197 GGt 189

Iron 24 Iron 34

There you have it ......
John