Day Seventy Four to Seventy Seven

Hi Everyone

Sorry for not updating my diary lately, but has been a lot of things happening here lately, between Electricians and friends and visitors, as well as my Tx, I have been all over the place and just haven't been able to sit down and relax to update my Post.

My sides are being kind to me again and it has made me able to cope with the mayhem and hive of activity that has been going on here. The Tx is going relatively smooth at the moment, but it is my 12Th Injection tomorrow, so it can change in a day, but keeping positive about it still, what ever happens, just stack it with the rest of the crap and get on with it.

My bed and my cave (bedroom) have become very good friends whilst on Tx and its as if it is my comfort zone or safe house at times But buy the same token, I have to watch i don't spend to much time there or get used to hiding away when things get tough, as its really easy to fall into that trap of escapism.

The Taste bud thing I have come to the decision that its going to be with me for the duration of Tx, cause there is no improvement what so ever with this, so i force my self to eat the food, as bad as it tastes or should i say doesn't taste, just to keep my food intake going. I also have become fond of my Health milk shakes and enjoy them, still snacking through the day and drinking my fluids.

I noticed that the Forums were down for maintenance last night for me, and from Jb's post all is going well now, funny how you miss it even if its only down for a while, the forums both AHCS and Nomads have become an integral part of my life and Tx journey... and places of Support and

Friendship..

Be Good all and to Each Other
Hugz
John

Day Seventy Three

Hello Everyone

Well today my sides have slowly but surely backed off to a point where i could get out of bed and have my breakfast they have still been with me through out the day and at times I was short of breath often, and feeling light headed. Lots of things go through your mind on Tx and pains and feelings come and go at very random times, I also had some trembling late this afternoon and thought for a while that i was going to get some chilling Rigors happening again, but thankfully i didn't, I don't like them at all !!!!

Whilst at the GP on Monday i also told her of this trembling and my moods were once again changing and she said to take some of my Diazapam, which I did tonight and now feel much calmer and abit happier. I think it will take me a few days to get over the other night and days extreme Sides, so will just be chilling out and recuperating for the next battle of what ever this Tx decides to throw at me....

Take Care all my Dear Friends

John

Day Seventy one and Seventy Two

Hello All

Well Mondays Injection day went off fairly well during the day, a god mate came over and done some work on our Air Con system for house and we now have half of the place warm, very happy about that, Monday night late I started to feel a little fatigued and went to bed early, well early for me anyway. Then it started, the worst night I have had while on Tx

Probably the best way to describe it was, that is was a night of Delirium and Madness, all sorts of dreams and nightmares combined and periods of semi awakened, had to change twice through the night from massive Sweats that soaked me to the bone. Talk about strong, and yet could not seem to wake properly, as i have said before, the dawn was a welcome site, don't know what that means, but it seems to signal and end sometimes to these night time horrors.

Tuesday morning finally and i have never ached so much before either, you know the sort of aches that feel as though they are penetrating your bones and a throbbing stabbing pain on the side of my head that felt like a knife being plunged in at random times. Slept nearly all day and the night sweats had now turned to day sweats, three changes of clothes and showers later and some small amounts of food, it was time for my weekly GP visit.
Went to GP and had my usual blood pressure and weight taken, pressure good, weight is back down again to 68 kgs, so much for my increase last week, told her of my nightmare time with Tx and she said that's the Interferon dishing out its gifts to you, and that all i can do is go back home keep my fluid intake up and just rest as much as i can until it passes. I asked her about my taste buds still not functioning and that food tastes so bad that i don't want to eat and she told me to snack often and keep up my Energy drinks as well. All i wanted to do was go home and get back into bed and sleep this event away..
Support is everything really, when i came online to update my diary and read the posts in my thread, I was overwhelmed and it made me realise i am not alone on this journey and I alone at times need a helping hand to get through it, I am being as strong as I can with Tx, but at times it wears me down to lonely and dark times and to see my Friends well wishes was just what I needed and received.....

Never Give an Inch.....

Thank you to All

John

Day Seventy

Hi
Got up really early this morning and did not want to get out of my nice warm bed, the mornings are crisp but the sun warms me up nicely while i have my toast and Ribas. I have noticed since i have been feeling better with the Sides, that i must be doing something or keep active, always seem to be looking for stuff to do. May be a taste of things to come if i beat this virus, makes a hell of an incentive.

Been having my health drinks which are keeping my stomach full and hopefully making up for lost food intake, Moods are definitely evening out now and I have been fairly placid the last few days, Injection day tomorrow which will make it number 11.
For the last 2 Injections, I have become very angry after them, so hopefully this week will break that cycle, we will soon see and i will be focusing on not letting my anger get the better of me.

Have also noticed some scalp irritations starting as well, its a little bit itchy, but more so painful to touch or brush my hair.

Will try some medicated shampoo and conditioner to combat this new event, maybe I should make up a list of Sides and note them down, to see if some pattern is emerging......

Lots of Love
John

Day Sixty Nine

Hello There


My nagging cough is coming back again, have noticed its gets worse of a night, and I am using a Ventolin Puffer now which helps. Went out today and visited my friends and helped them with some small building work, i feel as though i am able to mix with people easier now then a couple of weeks ago. No headaches to day and concentration is improving also Still getting Riba Buzzing of a night, but its gradually getting so i can ignore it.

I was thinking that we may never be the same people again after Tx has finished with us, I feel that I have changed and I don't know yet whether its for the best or will it be for the worse.....

Cold weather is also playing havoc with my Arthritis in my hands, Come on Summer.....


That's about it for today

John

Day Sixty Eight

Hey

Well sort of a mixed day today, awoke early and felt abit washed out physically, had my morning Ribas with my toast and peanut butter I don't know why this occurs, but in the mornings my taste buds seem to work OK, but as the day goes on and tea time approaches, they are nearly non existent again and eating is just plain horrible.

Doesn't matter how nice the food looks and smells, when i have the first till the last mouthful, its like eating chalk dust. I force myself to eat it though as I know I must. Also started to get a strong buzzing back again after night time Ribas, it is manageable, but at times is very strong almost like as if you had 20 cups of strong coffee and other times very mild.

My rages have subsided nearly altogether now and i have been working on them daily, I hope the family notices as at times it extremely difficult to control them.
Oh this wonderful Journey of Tx and Side Effects, almost like a lucky dip, when you think about it, LOL

Still I am moving forward and this will just be another hurdle to jump over ...

Stay Strong
John

Day Sixty Six and Sixty Seven

Hi Everyone


Have been having extremely good time with the sides the last couple of days and loving it, my energy is starting to come back and i finally feel like participating in life again. My taste buds are still crap, but that don't matter, the trade off for feeling OK is worth it.

Still getting Dizzy Spells and have learnt real quick, not to get up too quick and to take my time going up and down stairs in our house. The Riba Rages have also subsided and a calmness is once more with me ......

Hope everyone is keeping well and look after yourselves

John