Wednesday, November 25, 2009

Day 273 to 276


Hi Everyone

Haven't posted for the last couple of days as I have been totally exhausted riding on this merry go round of TX Sx, you just never know whats in store next, the cruelest lucky dip I have ever bought into. My energy levels and aches, pains and headache's have been very severe and my liver area is swollen, GP seems to think I maybe having a flare up of virus activity with the HBV and I am off to see Liver Specialist Friday 4th December and will be getting him to check things out.
It's a good life if you don't weaken as they say and at times I have been so week cant even get out of bed, but hopefully things will improve and I can knuckle down and get back on with it....
We had some visitors stay over for a few days and that was good and I enjoyed the company, it was a nice change because even unwell I managed to get some laughs and that always cheers you up...

Stay Strong Everyone...

John

Saturday, November 21, 2009

Day 271 and 272


Hello all


Well the last few days have been complete washouts and have had no energy whats so ever, all I could do was just rest and take it very easy. It certainly is a wake up call after having some relief from Sx and it goes to show you who is boss when it comes to Interferon.

Had my 39th Injection tonight an I am now officially into single digits, only 9 to go, Hopefully tomorrow will be be better then the last few Sundays and will be keeping a positive attitude in that direction. I still reckon laughter and good friendship are the arch enemy of Tx Sx and many
times it is more effective then any third party meds that are supposed to be helpful.

I have had a big improvement in my moods and emotional sx with the Lagactil that my Liver Specialist prescribed and the family is also happy with my progress with this. I know that many medicines are described not to be taken by people with certain diseases, but many times the benefits out way the risks and give much needed help to various medical or mental situations.

Well I hope everyone has a great weekend and remember if you cant say anything nice, don't say anything at all......

Your Mate
John

Thursday, November 19, 2009

Day 270


Hey there


Another hot day today ending with the usual summer storm, felt a bit better again today and went out to the next town to do some things. Its was good to get out and about for a while, the reflux is getting better and making me feel more comfortable.


Not sure whether I have a blood test this week or not, so will have to check that, still get plenty of brain fog and I have to have lots of notes to remind me..... LOL


John

Wednesday, November 18, 2009

Day 269


Howdy

Another very hot day again here today with temps in the 40's and it was 45 C yesterday, so not much chance in venturing outside, way to hot. Sx were reasonable and have started some reflux meds and also back on the Thrush Lozenges also, have to get these things under control. I am still taking my Lagactil medicine and it has helped my anger rages a lot, my Liver is still quite swollen and at this stage all I can do is virtually rest and take it very easy.

Well Thursday all ready tomorrow and this week is almost gone and Needle number 39 coming up this Saturday night, count down is on once I get to single figures, seems like an eternity at times.......

Be Good
John

Tuesday, November 17, 2009

Day 268


Hi


Today I went to my GP and told her about some swelling and discomfort around my Liver area which is quite tender at the moment, this isn't the first time I have had this, I used to get it before TX as well, each time this occurs it seems to be more so then the last, so I thought better get it checked out. While there She had mentioned to me about another Biopsy at EOT to see where my cirrhosis is up to and also may have some tests for cancer, mmmmm will wait and see on that front, one thing at a time, flat out getting through TX at the moment and at times is not easy for me. I guess I will stack it with the rest of the crap and just get on with it....


Stay Strong Everyone


John

Day 266 and 267


Hello


Well Sunday wasn't too bad a day and we had two lots of visitors over and had some good laughs also Sx was relatively kind and overall a good day. Still having trouble with my cracked tongue
and thrush, but making some headway with that with Meds...

Monday was a complete wash out, think I have been hit by a freight train, well it felt like it, I had absolutely no energy and was a weak as a kitten, I helped my wife change the bedding and I changed four pillow cases and was feeling faint and out of breath, think my bloods may be dropping again. The rest of the day all I could do was sit or lay down and just take it very very easy, better days to come....

John

Saturday, November 14, 2009

Day 264 To 265


Hello Again

The last few days have been a bit of a wash out, usually Friday and Saturday's are my best days but this week for some reason, it's all different, just luck of the draw with Tx I suppose. Anyway I just rested and rolled with it and got through them.

Tonight I had my 38th Injection and so far so good, starting to feel it working and probably another night of restless broken sleep, but hey, I am used to that and soon better times are coming and will be looking forward to those. The Tx is sure one mixed bag of events and mystery......

Stay Strong

John