Thursday, July 9, 2009

Day 137


Hi

Had a much better day today, only had dry mouth and some itching skin places, but other then that was quite calm as far as Sx go. Will be getting back into my Health Shakes again to help combat my weight problems and endeavour to try and eat more between meals. The weather here was very windy and cold again, guess that's why they call it winter, LOL...

I was thinking today also about those who are nearing EOT and how life will be for them after it, I hope that everyone whether successful or not, gets there lives back to some sort of normality and peace.Not much more to add tonight, other then to wish everyone well and keep up the fight against these insidious Virus.....

Happy Hunting
John

Wednesday, July 8, 2009

Day 136


Me Again

Well today was a vast improvement on the last few days, still very washed out and tired, but Sx are becoming manageable again thank goodness, went out to next town today to do some looking around and mostly just to get out of the house for a while and have a change of scenery. Had some lunch and returned in the afternoon, slight headache started and I tried to occupy myself going through some old documents and sorting them, but alas could not get focused at all on this and soon lost patience and went and had a sleep for a couple of hours and even then I couldn't quite settle, probably left overs from the last few days I guess.

The Psychologist rang me up today and informed me that he was putting my appointment off for another week, due to himself having a head cold and he didn't want to expose me to this in my current health state, which I was most happy about him thinking of me in this outcome.

Nothing big planned for Thursday at the moment, just wait and see what it brings to us all.....

John

Tuesday, July 7, 2009

Day 134 and 135


Hi Everyone

Monday

Well Monday started off sort of OK for the day after my Injection, the usual uneasy feeling, but nothing too bad, I had a GP appointment in the afternoon at 1-40 pm, so down I went to see the 3rd Doctor in the practise, who I have only seen once before a long time ago. My usual Doctor and her Husband who is also a Doctor are still on holidays, hence the 3rd Doctor I was seeing.When I arrived I could feel that I was starting to get tired and was told there was a some waiting involved as she was running behind her appointments, 2 hours later and some sleeping involved, I had a massive headache that almost made me feel as if I wanted to be violently ill everywhere. Lucky I had my daughter Renee with me, as I could hardly even focus on where I was, so my name gets called and in we go, I give her my side effects questionnaires and tell her i am here to get my weight and Blood pressure taken as well as ask about any thing that I might be curious about. She asked why the forms and I explained I was on Tx and this is what the Specialist asked me to submit weekly, Oh she said are you on some sort of Tx, she had my file open on her computer, thought she might have at least looked at it before she called me in. So I get my weight checked and I am back down to 65 kg again, lost most of what I have gained ( Oh Well, back to the Drawing board there ) I then sat back down and she asked me what blood tests she wants me today, I thought what ! , still being very out of it with the Sx and took me a while to realise that she was talking about Blood test Request forms and I was talking about Blood Pressure being taken, Oh she said we can do that and she did, all normal, asked me if there was anything else and I told her about a suspicious growth i have coming up on my arm, she looked and said, Its looks like an old age spot and its OK.
By the time we got out of there, I didn't even know where I was hardly, Lucky Renee has just got her Learners Permit, because I was that ill I couldn't even drive back home and the headache was increasing. I came home and went into the Shower just to stand under the hot water to see if that would help my headache and it did a little bit, I took some Paracetamol and went to bed and couldn't even talk to my Tx Buddies on the phone as we usually do.

Tuesday

I woke up 3-00am Tuesday morning in a lather of sweat and a cloudy head, had to clean up and go outside to cool off, went and slept in another room as to not disturb Cheryl and again awoke at 5.30 am in another lather of sweat and all my bones aching something fierce, so clean up again and laid back down till the sun came up, had my Ribas at 8-00am and went back to sleep for a little while, then another shower and started the day which was very slow I can tell you, picking up now and hopefully was just the last of a bad 4 week cycle of Injection Sx, still feel very warn out and tired, but getting there again.
It nearly broke me the last couple of days, but with my Tx Buddies and my Stubbornness together that's not going to happen !!!!!.
In ending, sorry for long rant, I think that when we agree to take on Tx at the Hospitals, Clinics, we in a way are agreeing to get access to Pandora's Box and each and everyone of us gets a front seat vision and feeling of what this Mythical Box beholds in store for our journey ahead.....

Hope everyone is well and feeling OK

Your Mate
John

Sunday, July 5, 2009

Day 133


Hi Again

Well had my 20th Injection tonight at 8-30pm and are starting to feel it's effects now, nothing bad, but can feel something happening hope this weeks needle will be kinder then the past few and give me a bit of a rest from the usual, it may do, because as I have said before, I think patterns seem to form to the Tx after a while, even random patterns, so if it works out like that, hopefully i will have good run this week.

Strange how 3 to 4 days after the Interferon I seem to suffer Sx all over the place, then you come good, as good as one can do on this and then its time to take the next Injection just as your feeling alright, must be to let you know there is no free ride in life eh.Anyway no rages today and did some small jobs around the house, my Brother came over and visited us for a while and gave me a hand doing some shelving. Usually i don't want visitors lately and I don't mean that in a bad way for them, its just me, I seem to find it easier to withdraw from them instead of socialising and enjoying the company, will have to work on this before I alienate all my visitors altogether.....

Keep Well
John

Saturday, July 4, 2009

Day 132


Hello There

Slept in this morning till 9-00am, should have been up earlier to take my Ribas at 8-00am, but being a cold and windy morning again today, guess my bed was more appealing, never mind, still took them, just a little late, that's all, as I like to take them at the same time each day if possible.

Dry mouth all day today and have been drinking my usual heaps of water, may be Sx or the windy weather, not sure. Had a a couple of Mini Rages also today at my family, Oh Boy, bet they cant wait till i finish this Tx as they must be sick of my little temper tantrums by now. Thankfully and hopefully they don't take them to heart as i don't really mean to use them as my whipping board.

Had an overall slow day and spent some time with my wife helping her put up pictures in our house, doesn't it make a house feel more homely and personal as you add your feeling into decorating, a nice quiet and peaceful day, which I was very thankful for Sx wise...

Keep well and be kind to each other....
John

Friday, July 3, 2009

Day 131


Hi

Well today was a pretty reasonable day, no major aches or pains, just my usual dizziness, has been very cold and extremely windy here today also. Have noticed the old Taste Buds are starting to go wacko again, thought that part was going well there for a while, ah well, back to soups and Milk Drinks with my health shakes.

For some reason have gone right off potatoes, cooked in certain forms, weird stuff this Tx, never know what little gem it has up its sleeve next.

Still have more reserves to give it.......

John

Thursday, July 2, 2009

Day 128 and 129 and 130


Hi Everyone

Haven't posted for a few days, not due to Sx, but had some visitors for a couple of days and the other night fell asleep early, my moods have been a lot better and I feel a lot calmer, still have some funny thinking, but steering that away before it drags me down.

My Psychologist rang me up the other day also and had a chat over the phone and discussed my previous thoughts and feelings and I have an appointment with him next Thursday.. 20th Injection coming up this Sunday and wont belong before I will be half way, yee Haa....

Hair is still thinning out and there are lots of hairs on my pillow case every morning, must keep them to make my wig...The Lip Balm has helped nicely with the corners of my mouth cracking, it soothes and seems to repair it well.

Well that's about all for now, stay Tuned...
John