Tuesday, April 28, 2009

Day Sixty Four and Sixty Five


Hi

Monday I went to my GP visit as usual and this time got some positive news, I have put on a Kilo on my weight I am now 69 Kilos, must be my clean healthy living, LOL. My blood pressure is fine and also had a talk to her about my recent Rages, I have an appointment Wednesday with Psychologist and will be discussing anger management.
My Thrush is back and forward, but mostly backed off, have had a pretty good day Monday and achieved a lot. Slept in the afternoon as I had developed a headache just after lunch.
Tuesday was also a good day in the morning, its mainly afternoons that i get headaches still, today was no exception and all i could do was take my Paracetamol and lay down. Spoke to my mates today on phone and so far i think we are all going through similar sides.
Emotions and general mood, do tend to slip if i don't watch them, I feel that I could fall into this trap very easily, trying very hard at times with this fight... Still having my Health drinks and Multi- Vitamins, some days i think these are doing me some good.....

Keep Well
John

Sunday, April 26, 2009

Day Sixty Two and Sixty Three


Gidday

Well have been going through my well time the last few days and have had a reasonable time with Sides. Tomorrow is my Share Care Doctors visit again and will be getting myself checked out again, hopefully wont have lost anymore weight. Trying to eat still, but is very hit and miss, still get a metallic like taste in mouth and this sometimes i feel kills off my taste buds quite a bit, have had cravings for cheese and milkshakes lately too. I am now trying to have my energy drink each day and would like too have it twice, so will give that ago as well.

Multi Vitamins are still being taken and also my Chromium for Sugar control, Needle day tomorrow as well this will be Number 10 and that leaves only 38 to go, there moving along now and cant wait till i get to half way...

Had a great time at Nomads Chat the other night and was so good to catch up with people, everybody should at least once or twice come along and join in, Its just the place for Fun and Serious stuff alike, there is nothing like a good Laugh and a Natter to lift up your spirits. Thank you Seamo for running these Chats and its great to participate in them..

Well will report back in soon and look after yourselves
John

Friday, April 24, 2009

Day Sixty and Sixty One


Hi
I have noticed a pattern emerging with the Tx Side Effects, I would have to say for the last two weeks I have had 2 - 3 Days feeling not too bad out of the 7 days, with the others, a real mixed bag of Side effect goodies.
Its funny now, it seems that its either a famine or a feast with Sides. But I am so thankfull for my my well feeling days, this helps me cope with the really bad days, my cough is easing now and still coughing up crap, but it is on the mend.
Thankyou Everybody for your kind Support and Friendship, I think this is so important, not just for me, but everybody here at Nomads...
Pushing forward with new food ideas and slowly getting to eat something that is appealing to eat ....
Lots of Love to you All
John

Wednesday, April 22, 2009

Day Fifty Eight and Fifty Nine


Hi Folks

Double Post for my Diary tonight, Last few days i have felt as though the dreaded Steam Roller has come back into my Tx life again. The Last two days i have woken up aching and absolutely no energy and all i did was sleep and rest. Have started taking some more Anti-Biotic for my cough which was developing into some new form of dissolving lung disease, Just kidding, but that's how it feels at times, also having a Ventolin Puffer and is helping heaps of a night as the cold air comes in. Also been having some Extreme Milk energy drink after tea of a night which seems to help fill my empty stomach.

Food still is horrible to eat and constantly trying all sorts of foods now to see if i can at least get some nourishment.

Sorry for the downer post, but this is life in the fast lane after all and have to roll with the punches.....

Take care My Friends
John

Monday, April 20, 2009

Day Fifty Seven


Cranky One Here

Don't know whats going on with my Temper, as I previously wrote, this is an ongoing saga lately....

First off today, was my Share Care GP appointment, had the usual, blood pressure and weight taken, which has now dropped to 68kgs, I was 75 kgs when started Tx. Informed her of my nagging cough which has come back again and starting to cough up crap now with it, very sore chest at moment from too much coughing. Talked also about a Flu Injection as well, as we are going into winter here now, week eight Bloods were in and good news is my Iron Levels are now at a near normal level, Yea some good news, but Platelets are low and weight is down and she asked me not to do any heavy stuff what so ever, also i think my ALTs and ASTs have gone up, but they seem to fluctuate all the time with me anyway.
From there to the next town to a Dietitian and have a chat about what i can do to help with my weight loss and appetite in regard to a proper Diet, came home with and Extreme Milk Supplement and some literature on eating healthy and strategies..
I did get extremely angry and almost to the point of violence at the Hospital, outside of course, when i was leaving, never mind, i am seeing Psychologist next week about this. Had my 9th Injection today and five or six hours later was desperately looking for my cave, to have a siesta and some peace and quiet to chill.....
John

Sunday, April 19, 2009

Day Fifty Six


Hello

I think the good run of health lately may be running out, tonight i had trouble eating and very tired and aching, cant expect the good times to last forever eh, so i just rested and reflected back on how wonderfull the last three days have been. Lots of thought's go through your mind when your well, shouldnt question them i suppose, but you tend to think that maybe the Tx might not be working and then the sides come back with a vengeance and you relax again.


How bizarre, I feel at ease more when i am not well, dont know how that works.....
Going to my Share Care Gp tomorrow for checkup and weekly report in and after that, off to next town for an appointment with a Dietician, to see about my weight and eating problems.
9th Injection tomorrow and only 38 to go, woo hoo ............

Take Care all
John

Saturday, April 18, 2009

Day Fifty Five


Howdy All


Another good day today, but did run out of energy later in the day and almost had another Riba Rage, but stopped it before i went into full on rat bag status. Had a sleep this afternoon and replenished the batteries abit.


When i woke up I had a headache and took some Paracetamol, taste buds are going troppo again, as tonight's tea was one of my favourites was eagerly waiting for it to be ready, but when i started to eat it, the same thing as the other night, tasted horrible..

Will be glad when this part passes and hopefully it wont be like this for the full term of Tx, crazy how things like this raise there ugly head, just when you thought you have seen all it can throw at you, it comes up with another little gem to cheese you off.


Here i was thinking that the sides were leveling out, HA, silly boy, but you know, bring it on I say and lets make this a battle and a half.......

Be Good
John